Dr. Walsh said that James' CT scan looked good so is moving forward with immunotherapy. He's scheduling 4 more treatments then another CT. Woohoo!
VA has paid for the recent appointments including immunotherapy yesterday. We're in the process of transferring scripts to VA too. It ends up that our Tufts insurance was purchased through the MA Health Connector "marketplace" which is federal and VA is also federal and you can't access both so James was dropped from our connectorcare "marketplace" policy. If I earned less money, if we qualified for fully funded Mass Health we could have used both Mass Health and VA. Would have been nice if they had sent a letter to let us know. Maybe a phone call. Maybe if someone had a clue with the 20 phone calls, 60 hours, day spent at the Health Connector office. Ugh. The VA is strongly encouraging me to have some kind of back up healthcare for James. As I can't access a paid policy as a self employed person for us as a family I'm looking into early "retirement" from UMass (worked there 1986-2000 and am vested in the state system) to pick up state retiree healthcare and collect the small state pension most of which would go to paying for the state healthcare which looks fairly expensive. Water under the bridge I suppose and worth it if the treatment is working.
Back to the happy news. James is well. 4th immunotherapy was yesterday. CT looked good (need to read results to see what "good" means). Onward and upward :^)
Friday, December 14, 2018
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