Tuesday, March 26, 2019

Things are happening...

James, 6 a.m. pre-surgery, 3/26/19
A few things happening last week this week next week...

Last week we saw the oral surgeon who is completely on board with our plan to wait and see. Nice to meet with someone who's ok taking it slow. He's private practice but had worked for the VA previously and is quite knowledgable with similar cases. Great guy. Teeth are on hold.

Today we came into the hospital crazy early for the combined day surgical procedure to enlarge esophagus space for ease of eating/swallowing and also Botox injection someplace in the trachea to relax spasms for better speech using the voice prosthesis. The surgeon said all went perfectly. He said we may not see any significant change for a week or so. He also said that he's not moving super fast enlarging esophageal space and that we can repeat if not enough.

James is pretty wiped out now, snoozing in the recliner. He's had a frappe and a little coffee. His throat is sore so we may not try any significant food until the pain is gone from the procedure. Maybe a nice smooth savory soup tonight.

This week we have a CT scan on Friday to check things in advance of the next immunotherapy infusion, hopefully still looking good! Next week will be follow-up with the surgeon midweek and immunotherapy at the end of the week, we'll see the oncologist on infusion day too when he'll tell us how the CT looks. Feels a bit busy medically after a nice lull.

All in all, we're well. Forging ahead :^) hope you are too! xxoo Beth & James


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